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Professional journalist coping with the devastating biological neurological disorder, CFS/ME, as well as fibromyalgia.

Biography

Fair Comment and Criticism

"Everyone has a right to comment on matters of public interest and concern, provided they do so fairly and with an honest purpose. Such comments or criticism are not libelous, however severe in their terms, unless they are written maliciously."
(Hoeppner vs. Dunkirk Pr. Co., 254 N.Y. 95)

I make every effort to make sure I am factual, but I do have brainfog. If you believe I have misstated a fact, I welcome it being courteously brought to my attention with a link to the originating source. I say thankya.


My educational background:

B.S. in Agricultural Business - Fresno State University

A.A in Photography - Fresno City College

Flex degree - Rochester Institute of Technology: graphic design, photography, printing.

M.F. A. all but thesis, Photojournalism - University of Missouri, Columbia.


I have worked as a journalist and graphic designer for nearly two decades now. I realize that the public has very little idea what ethical journalists do, but I'm "old school" and my current focus is verifiable factual documentation, research and research analysis, and information synthesis; at least when my brain works properly and I have the energy. This is my training. This is what I know how to do best.

My primary medical diagnosis is Chronic Fatigue Syndrome (CFS/ME) comorbid with Fibromyalgia. I have also been medically diagnosed with CFS specific encephalopathy, hypothyroidism, IBS, absence seizures, and mitral valve prolapse in conjunction with these illnesses.

I was diagnosed with Fibromyalgia just prior to beginning the journalism master's program at Mizzou in 1996. I most likely also had CFS/ME at the time, however, the doctor that diagnosed me knew more about fibromyalgia and since my main complaint at the time was pain, that was my first medical diagnosis.

I have three children and both my daughters have fibromyalgia and CFS/ME also.

My youngest daughter has been medically diagnosed with fibromyalgia, chronic migraine and seizures. Unfortunately, ninety-nine percent of the studies of CFS/ME and fibromyalgia in children and adolescents are predicated on neurasthenia, a quaint psychiatric diagnosis from the 1880s.

The biological research that is available indicates that symptom presentation is different from adults and a lack of biological education on the part of many pediatricians often results in misdiagnosis and medically inappropriate treatment.

My oldest daughter recently received a medical diagnosis of CFS/ME from Dr. Joseph Brewer, an internist in Kansas City, MO. He confirmed my long-time suspicions.

I received my "official" diagnosis of CFS from Dr. Charles Lapp out of Charlotte, N.C. Dr. Lapp has a clear understanding of the level of pain control that most fibromyalgia patients need.

Dr. Myra Preston of SiberImaging in Charlotte did the qEEG computer imaging testing, objectively showing that my cognitive malfunctions are anything but "mild."

The testing also objectively backed up the testing results of the few appropriate tests the neuropsychologist I originally saw for testing, managed to include in an otherwise pointless battery.

This is the same neuropsychologist who pooh poohed my organic results waving them aside as if they were no-see-ums. Well, doc, the computer saw'um. I think I just scrambled a metaphor. Watch where you step!

Interests

Like the world's all about me, NOT, but here is a limited list of likes, dislikes and random thoughts: I find pop culture utterly amusing no matter what the era and you will find such references scattered about in my ramblings like a rash of pimples. I'm "mad" about photojournalism, thoroughly researching things that interest me, vintage volkswagons, and miniature pinchers. In my former life, I was a dedicated skier, who also liked slow pitch softball in the summer and rock climbing and led the quinessential American childhood. By that I mean that if we weren't in school, we spent every waking moment outside playing neighborhood pickup games of soccer, softball, "Ollie,Ollie Income Free," freeze tag, catching crawdads, building rafts, swinging out over the creek, what can I say, the usual. Currently, my most burning question is, "What was WB thinking when they spiked "Angel," substituting laugh tracks for wit driven comedy? Other things I like: word play, Grissom!, facts, and collecting antique linens and holy communion sets. I'm a wannabe master gardner, who loves the color light yellow cuz it leaves me "walkin' on sunshine," and who likes the color orange only in small edible globes. I hate "beige" doctors who are lackwits, even worse: doctors tripping over their overblown egos who wouldn't recognize "first do no harm" if it was a snake that bit 'em. Hmmm, that last one sounds bitter. I need to associate with a new class of doctors. LOL. I'm also not too crazy about people who refuse to take responsibilty for their choices and the consequences of those choices, blaming anyone and everyone they can think of, other than themselves of course. I most definitely don't recommend lying to others, but I've found, at least for me, that lying to yourself is the fasttrack to eternal misery for yourself and everyone you touch. If you are an Meyers-Briggs Type Indicator (MBTI) fan, I am an INTP, but my I and my T scores are weak fence sitters. And finally I treasure the ability to laugh at life, and myself, as it has saved my sanity on many occaisions and possibly averted one or two homocides. No, no really, "Once at band camp..." "Blessed are those who can laugh at themselves for they shall never cease to be amused." The short list of all-time favorite movies: Princess Bride, Coolhand Luke, Tremors (I'm terrible at Six Degrees of Kevin Bacon but I do like some of his movies), Beverly Hills Cop, Benny and Joon, Tootsie, Pride and Prejudice, Chocolat, Songcatcher and Monty Python. * And yes, I admit to having seen the Rocky Horror Picture Show more than once, but far far less than the hundreds of times most fans have re-lived it. Favorite authors whose names I remember off the top of my head: Jane Austen, George Nash, George R. R. Martin, Anna Quinlan, Dr. Seuss and Molly Ivins. Books I wholeheartedly recommend because I read them recently and actually remember their titles: Dark Tower Series by Stephen King - I've been following this one for decades. The Curious Incident of the Dog in the Night-time by Mark Haddon Stiff: The Curious Lives of Human Cadavers by Mary Roach