What the Heck are They Talking About: Neurological CFS: Biomedical Researchers

I'd like to highlight the work of serious biomedical researchers whose valid peer-reviewed evidence is ignored by the "hysterical docs."

If all you've ever read about fibromyalgia and ME/CFS is psychiatric drivel, I mean interpretations, you are in for a scientific treat. Admittedly, these studies are harder going than simplistic articles telling people to get a life, a change of attitude, and join the "exercise is good for every body club."

I also use a tabbed browser, so I always have one tab open to a medical dictionary or neutral source of biomedical information. I have to accept that I can no longer spout polysyllabic phrases at the drop of a hat and what I understood yesterday has slipped out of my grasp yet again so to speak. I just go back and review as many times as it takes to understand. So for those of you with ME/CFS and fibromyalgia, hang in there. You can do it.

Biomedical researchers:

I am starting with Dr.David S. Bell because so many children and teens are being misdiagnosed with psychiatric disorders when they have actually have biological disorders which are physically worsened by forced exercise and psychiatric treatment. Although clinical experience is downplayed by academic researchers, I 'm old-fashioned enough to heed the voice of experience.

If you don't no know very much about ME/CFS I recommend that you begin with the free pdf version of his book, Faces of CFS.

Dr.Bell graduated from Harvard College in 1967 with an AB degree in English literature followed by Boston University with an MD degree in 1971. Post doctoral training in pediatrics was completed in 1976 with sub-specialty training in Pediatric Behavior and Developmental Disorders. In 1978 he began work at the University of Rochester but soon began a private practice in the town of Lyndonville, New York.

In 1985 nearly 220 persons became ill with an illness subsequently called chronic fatigue syndrome in the communities surrounding Lyndonville, New York. This illness cluster began a study of the illness which continues today. Dr. Bell is the author or co-author of numerous scientific papers on CFS, and, in 2003 was named Chairman of the Advisory Committee for Chronic Fatigue Syndrome of the Department of Health and Human Services. Publications include A Disease of A Thousand Names, (1988) and The Doctor’s Guide to Chronic Fatigue Syndrome, (1990). A comprehensive review of CFS is currently being written and is hoped to be published in 2005.

Dr. Bell currently practices general medicine in Lyndonville, New York with his wife Nancy, a family nurse practitioner. Roughly half of the patients seen in the practice suffer from chronic fatigue syndrome, fibromyalgia, orthostatic intolerance, and/or myalgic encephalomyelitis. He also distributes an interesting newsletter.

Dr. Nancy Klimas of Miami has a substantial publication record in the immunology of AIDS and CFS. Dr. Klimas also manages one of three federally-funded CFS research clinics.

Dr. Anthony Komaroff of Harvard has numerous publications demonstrating neurological damage in CFS.

Dr. Peter Rowe, a cardiologist at Johns Hopkins, counts among other peer reviewed publications the only complete research article on CFS that has appeared in the prestigious Journal of the American Medical Association.

Dr. Benjamin Natelson and his staff at the New Jersey CFS Clinic have produced numerous peer-reviewed publications in the fields of bio-mechanics, neurology, and immunology. Natelson's group has published several studies demonstrating that psychological causation cannot explain the symptoms of ME/CFS.

Dr Vance Spence, Chairman of MERGE & Senior Fellow in Medicine, University of Dundee, UK, and Prof Julian Stewart, Professor of Pediatrics and Physiology, New York Medical College, USA.

If you have not yet read their work on Orthostatic Intolerance, Standing up for ME [Biologist 2004;51(2):65-70]: please click on this link now!

There are many more biomedical researchers, but the brain is taareeed folks so this is all for today. If you want to search for additional research studies done by any of the biomedical experts above, start here.

What the Heck are They Talking About: Neurological CFS

Biomedical Researchers - Learn From the Best, Forget the Rest

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