What the Heck are They Talking About: Neurological CFS: Wrap your mind around this: There is no constant

Reality bites. Life goes as life goes and nobody asked me.

No matter how it is phrased I literally cannot be judged on what I could do yesterday; can accomplish tomorrow; nor does comparing me with your second cousin twice removed, who also has this neurological disorder, pertain to my unique individual situation. Existence is one big swamp full of quick sand. There is no constant.

Until you acquire a thorough, gut-deep understanding of this integral component, I can spout accurate medical information regarding this neurological disorder, CF'S/ME, until the cows come home and you still won't "get it." So give us all a break.

People, wrap your mind around this unchanging fact: symptom(s), symptom severity, even presentation of varying symptoms varies by individual, by the hour, the minute, the day (you get the idea). Unlike love, there is no ever-fixed mark.

And patients have minimal control over these factors. Although the extremity of this metaphor may be debated, it reminds me of beating children with polio because they refused to move. As in what part of paralyzed don't you understand?

Oh that's right, they weren't really sick, just demonstrating illness behavior. Defiant little brats. Probably had a personality disorder - refusal to obey authority or even questioning authority is a sign of that you know, especially to the person being questioned or disobeyed!

As patients, we are not trick ponies. We can't reproduce these variations on command. This makes testing difficult, because scientists rely on consistency as a way to control variables in valid research construct.

To the medical community: Nothing personal I assure you.

These fluctuations often make gainful employment impossible for a large numbers of patients. It has nothing to do with attitude. Personally, I loved my work, but even if I hadn't, the worst job on earth is better than this nightmare.

What? Chickens? Okay, okay, you have a point, let me rephrase that.

Personally, I loved my work, but even if I hadn't, the worst job on earth, with the exception of sexing chickens, is better than this nightmare.

What!? Cleaning anchovies? I agree, but I think the point as been made. Thanks for the input however.

This blog is my attempt to continue my calling despite its status as an economic outlay rather than income. But, the only thing that runs like clockwork at my house are the clocks. I go days and weeks without posting. Posts take anywhere from two hours to weeks and weeks to compose, fact check, and spell check.

Hey I try. Silly posting errors make it a bit of a production to resolve even the tiniest of technical glitches. I'd much rather see a production of Shakespeare myself. Now where did that DVD player go to? I could have sworn it was right here.

Of course the computer is plugged in. Yes, I know I hit a wrong button, but which one? And why isn't command Z fixing it, I'd like to know. Open a help ticket? I must look desperately in need of good snicker if you are suggesting that option.

What the Heck are They Talking About: Neurological CFS

Wrap your mind around this: There is no constant

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